The PCOS Chronicles

Last night I learned of another girl who has PCOS. She just found out she has it and, without knowing much about the disease, she could only ask her doctor questions based on the small tidbits she’s heard.

One of her first questions was, “will this make me gain weight?” This girl is very skinny, but she has a lot of problem with inflammation after she eats—so much so, in fact, that people have asked her if she’s pregnant.

“No. PCOS doesn’t make you gain weight. That’s just an excuse that fat girls use,” her doctor told her. Yes, her doctor. A medical professional. Then the doctor wrote a prescription for birth control so the girl would start getting her period again (which she hadn’t seen in about a year).

There are so many things that infuriate me about this interaction. First of all, the fact that doctors know SO little about PCOS. Second of all, how dare someone who is supposed to help people cure their health issues tell a patient that people use this disorder as an excuse to be fat?

I am also upset that the doctor merely prescribed birth control and expects that to solve all hormonal problems. Sure, birth control will make this girl get her period, but it’s not a solution. It will actually just cover up her issues without treating them.

I’m definitely more frustrated about this interaction than this girl was because she doesn’t know that she should be. Why shouldn’t she listen to her doctor? Why shouldn’t she do some research on the effects of birth control on her hormones and on her PCOS? As of right now, she has no reason not to believe the doctor.

I spent so. Many. Years. blindly listening to doctors and trusting their diagnoses and treatments. When none of these methods worked for my issues, it made me feel like I was the problem.

They made me feel like I was the problem.

I went to a gynecologist one time, a female, by the way, and she gave me suggestions on losing weight based on what her FIFTY-YEAR-OLD HUSBAND was doing. When I told her how I ate and how much I worked out, I could tell she didn’t believe me. She took one look at my body and, much like the doctor this girl saw, assumed I was using my diagnosis as an “excuse.”

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It makes me so incredibly sad how many women go to doctors and leave feeling more dejected and hopeless than they felt when they got there. When they spend hours sweating at the gym and trying to eat as little as possible to work past the roadblocks their body is giving them.

I’ve gone to doctors who honestly recommended eating only 500 calories in a day to lose weight. Others basically shrugged and told me I was doing whatever I could and they didn’t know why it wasn’t working.

PCOS is a condition that causes inflammation. It makes it difficult (but not impossible) for your body to regulate insulin. It makes it harder to lose weight and very easy to gain it (contrary to what this doctor said). It presents differently in everyone.

The chemicals found in our daily lives trick our bodies into thinking we have more estrogen in our systems and the rest of our hormones try to compensate for that. Most of us are in constant states of adrenal fatigue. Even really thin people who have “normal” blood sugar levels are sending their blood sugar soaring and crashing on a daily basis. Our bodies are just doing what they can to keep up with our modern lifestyle.

But doing something as simple as eating right for your hormones can help you get your body functioning better. I promise. Don’t completely overlook the things your doctor says, but try to do your own research to make sure you are finding the right solution for yourself and for your health.

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What I’ve Learned About PCOS

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PCOS is a jerk. On top of that, it is mysterious and sneaky. I’ve known that I have PCOS for the last 8 years and I have spent A LOT of time researching it. Here are some of the things I’ve learned about this rude disorder from my own experience with it:

  • It’s Different in Everyone- Remember how you’d learn a grammar rule in English class and just when you had it down, your teacher said, “but here are the exceptions to this rule?” Yeah, that’s kind of what PCOS is like. Since it is a hormonal disorder and everyone’s hormonal makeup is unique, there is no one rule that defines
    PCOS and how it affects people. As it stands, there are not many people even talking about PCOS. Unfortunately, a lot of the ones who talk about it do tend to think of it as a blanket disorder that can be lumped into one box. It is not. Some girls have facial hair…I do not. Some girls have thinning hair…I do not. Some girls get regular periods..I do not. Pay attention to your unique symptoms so you can find the right way to treat them.
  • Birth Control Does Not Cure PCOS-If you have PCOS and have been to a doctor, they probably tried to put you on birth control. While it might force a period and cover up some other symptoms like bad acne, it does not actually cure PCOS. As soon as you stop taking it, your symptoms will probably come back. Some people feel more comfortable taking the pill and that’s fine. In my PCOS journey, though, I found that birth control caused more trouble than it was worth.
  • It Doesn’t Define You-I have spent so much time hiding my PCOS. It made me feel ashamed and embarrassed. It made me feel like I was less than. I wouldn’t even bring it up because I didn’t want people to judge me about it. But guess what? It’s not my fault. I didn’t do anything to get PCOS. But it is definitely up to me to decide how I handle it. And I’ve decided that I’m tired of hiding it.
  • Eating Right and Exercising Does Help…Even If The Results are Slow-I have spent years killing myself with hardcore workouts. In fact, a nutritionist once told me that I work out at an athlete level. Unfortunately, the way I look does not reflect that. Believe me, I understand how frustrating it is to try to lose weight when you have PCOS. The second I stop exercising I start to gain weight. The PCOS weight loss struggle is full of disappointment. But that doesn’t mean it’s not worth it to keep doing your best. Eating right and exercising does help.food-healthy-vegetables-potatoes
  • It Is So Important to Do Your Own Research-In my experience, a lot of doctors try to treat the effects of PCOS and not really the causes. Even if these treatments work temporarily, they very rarely have long-term success. If you do not feel like Metformin is the right course of action for you and your PCOS, do some research to find the right alternative therapy for your needs. I am definitely not saying you should avoid the doctor or even that you should disregard their medical advice. I’m just saying that it is important for you to spend some time researching so you understand what is happening with your body.